I was initially discharged on a “possible crohn’s disease” diagnosis. For 9+ years following this hospitalization, I saw countless doctors and specialists searching for answers. I got colonoscopies, laparoscopies, endoscopies, ultrasounds, CT scans and more. Every doctor I saw had a different perspective on what they thought it was. Here are some of the things that I was told it could be: crohn's, ulcerative colitis, celiac disease, IBD, IBS, post-infectious IBS, SIBO, endometriosis, lupus, lyme disease, connective tissue disease, the list goes on. Blood tests, procedures, surgeries, and doctors appointments failed to pin-point what it was.
That initial episode of terminal ileitis was like a light switch for an immune reaction in my body, turning on chronic issues that I had never experienced before. I was no longer able to digest foods that I had tolerated my entire life up until that point. I had severe back-pain where I was put on pain-killers for months at a time, sharp pains that felt like knives jabbing into my abdomen, extreme bloating to where I looked 6 months pregnant and debilitating GI distress that changed how I could function day-to-day (I had diarrhea for 9 years!).
Exhausted from seeing doctors and getting test after test with no clear answer or remedy, I decided to take healing into my own hands. I started by experimenting with my diet. I cut out gluten, and later dairy, sugar, grains, and legumes and eventually found myself on a paleo/primal diet. I found this to be the optimal way of eating for me, as it freed me from the worst of the debilitating symptoms that I was experiencing. I had to be quite restrictive and careful with my diet, but I found relief.
Then, 2 years out of college I got acutely sick again, but this time it was worse.
I was on my way to a massage for neck pain that I had been experiencing. I pulled into a parking spot and out of nowhere I couldn't remember how to turn my car off. I couldn’t physically move my hands to take the keys out of the ignition, or open the car door. I felt drunk and disoriented and had no idea what was going on. I couldn't remember my phone number or home address. I’d reach right when I meant to reach left and felt like I was moving in slow motion. I went to the ER for stroke-like symptoms.
They put me at the bottom of the triage because I was able to form words (albeit, slowly). 5 hours went by and they finally got me in with a doctor. They suspected it was “just vertigo,” and tried to send me home. After I insisted something was wrong, they ordered a CT scan of my brain.
I will never forget the moment that the doctor came in, sat down, and looked at me seriously. She explained they found something on the CT scan. It was a large "lesion" in the left-parietal zone of my brain. It looked like it might be a tumor. They didn't know what it was, all they knew was that it was big and solid and they needed to do something about it quickly. The ensuing months were a blur.
That was almost 7 years ago. I realized, in that moment, that life is short and I could die. Death was a possible outcome and for the first time in my life I had to sit in a hospital bed for days on end, thinking, what if this is it? I was not the invincible 24 year old that I thought I was.
Despite countless appointments with doctors and specialists, naturopaths and therapists, I had no answer for why this mysterious, rare and deadly illness happened to me. Because of my prior health history, I knew it was all connected. I just had to figure out the “how” and the “why.”
My body went through a lot, post-brain-abscess. I was stressed, anxious and depressed and it quickly became debilitating. I suffered from panic attacks for the first time in my life. I was so fatigued that sometimes I couldn’t walk up the stairs or leave my apartment. I started getting night sweats where I would wake up drenched in my own sweat and have to change my clothes several times throughout each night. I wasn’t able to sleep. I would lay there all night with my heart beating out of my chest, overwhelmed with fear and worry. I was eating constantly, yet hangry and low energy all the time. I started getting cystic acne all over my face for the first time in my life. I gained 10 pounds of a “hormonal tire” around my abdomen. I was chronically bloated, brain foggy and moody. My period became either non-existent or 45-50 days apart. Within a year of my brain abscess, I was diagnosed with PCOS, SIBO, anxiety and depression.
My neurologist wanted me on SSRI’s and benzodiazepines, my OBGYN wanted me on birth control pills and spironolactone.
I was exhausted and my health was becoming a full-time job. I had to make a choice then and there that I was not going to put a bandaid on all of these problems that my body was screaming at me to deal with. Conventional medicine had saved my life, but wasn’t helping me be “well.” I needed to restore balance in my body through a combination of intentional holistic changes involving nutrition, lifestyle, mindset + more. If I had control over one thing it was how well I treated my body. What I put in my mouth, how I moved and rested, and how I took care of my mind.
I needed to balance my hormones by regulating my blood sugar, my stress, and getting myself out of 24/7 fight-or-flight mode. I had to restore function in my gut, support my immune system and help my body’s clogged up detoxification pathways. I needed to slow down, look at the big picture, address healing opportunities and actually listen to what my body was asking for.
Through a combination of nutrition, rest, movement, stress reduction, functional testing & targeted supplementation, I was able to eventually find balance.